To review the medical, ethical, and legal obligations in caring for adults with developmental disabilities DDs living in the community. The pertinent legislation was reviewed. While the shift from institutional to community care for patients with DDs is widely accepted as being beneficial, providing high-quality community care has proven to be challenging. However, there is little research on how to effectively provide community support to adults with DDs. As primary care providers, family physicians are often the first point of contact for patients, and are responsible for both the coordination and the continuity of care.
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Developmental disabilities are a group of conditions due to an impairment in physical, learning, language, or behavior areas. Children reach milestones in how they play, learn, speak, behave, and move for example, crawling and walking. However, the developmental milestones give a general idea of the changes to expect as a child gets older. As a parent, you know your child best. Acting early can make a real difference! At each well-child visit, the doctor looks for developmental delays or problems and talks with the parents about any concerns the parents might have. This is called developmental monitoring.
Accommodations and Access
A person may need support with cooking, banking, transportation, social situations, health care visits, and jobs. Three of the best-known intellectual or developmental disabilities are Down syndrome, autism, and traumatic brain injury TBI. Many families care for a person who has an intellectual or developmental disability. It could be a child, an adult child who lives at home with his or her parents, or even an adult sibling. If you are caring for a loved one who has an intellectual or developmental disability, you are considered a caregiver. A caregiver is someone who provides basic care for a person who has intellectual or developmental disability. As a caregiver, you may be doing the following things for another person:.
Developmental disabilities are attributable to a cognitive impairment, physical impairment, or both. They manifest during the developmental period from birth to early adulthood, and are likely to continue indefinitely. The life expectancy of most persons with developmental disabilities now approaches that of the general population. According to the neurodiversity model of care, developmental disability is accepted as a valued part of human neurologic diversity. The social model focuses on improving participation in society with accommodations such as adaptive equipment or improvements to the social and physical environment. The goal of health care for patients with developmental disabilities is to improve their well-being, function, and participation in family and community. Physicians should communicate directly with their patients, even those who have communication or cognitive differences. Communication may include speech, sign language, writing, letter boards, voice output devices, pictures, facial expressions, gestures, vocalizations, and behavior.